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This project commenced in April 2007 with the following general objectives:
There are three
general objectives that the EU has agreed to support:
(1) Develop a new European Endometriosis Support Alliance (EESA) which
will coordinate and provide comprehensive support and training to the 4
sectors associated with the condition i.e. individuals,
researchers/academics, doctors/nurses and employers. The Alliance will
be formally launched at a conference towards the end of the project
where key players in the field of endometriosis will be invited to learn
about the work of the project.
(2) Create an Internet based Endometriosis Community Gateway (ECG) that
will provide the focal point for all individuals and organizations
requiring information and support and in particular the general public,
the research community, health professionals and employers. The aim
would be to provide appropriate information and signposting to enable
each target group to find the information they require.
(3) To complete a comprehensive pan-European study of women
with endometriosis in order to develop an understanding of the quality
of life and socio-impacts of endometriosis on women the EU, employers
and member states. The results aim to understand the needs of women in
regards to their care, support and treatment in order to reduce
isolation, increasing understanding of endometriosis in the medical
profession and the corporate sector, hopefully helping to reduce
diagnosis times and improve best practice and reducing the impact all
round.
The grant will enable the European endometriosis charities, many of whom have very little or no funds to develop their own work as well as create a more powerful European group Rob Music, Chief Executive of Endometriosis UK, Lead Project Partner, says: “While there have been some improvements in the diagnosis and funding of endometriosis there is a still a long way to go. It is simply unacceptable that two million British women – and millions more across Europe – continue to live with an illness stagnating as a result of misunderstanding and inadequate levels of funding. We are delighted and thankful for the recognition of this need by the EU through this grant which should make a great difference at so many levels”
TFEI was the Coordinating Partner for the Project.
Public Health Programme
